duchenne Ireland - Events

By: Duchenne Ireland  05/12/2011
Keywords: Research Projects, Muscular Dystrophy, Duchenne Muscular Dystrophy

Cyclists accross Ireland are getting ready for the inaugural "Tour Duchenne" charity cycling event on Saturday 12th and Sunday 13th of September 2009.

The cycle arranged to fund research into Duchenne Muscular Dystrophy will take the participants from the National University of Ireland in Galway to Maynooth. Both Galway and Maynooth have Irish research centers linked to Duchenne research. The event will end in the newly renovated "Mantra" bar in Maynooth Town Center.

Duchenne Ireland, organisers of the event are encouraging everyone on the route to go out and support the cyclists in this cross Ireland challenge.

Duchenne Ireland supporters will be fundraising for the cycle in the towns en route and would be delighted to received support from members of the public and our supporters accross the country.

Be on the look out for our yellow "Tour Duchenne 2009" cycling jerseys. When asked why so many yellow jerseys, John Gorman organiser of the event said:

"Everyone supporting Duchenne Research was a winner and deserved a yellow winners jersey".

Kickoff of the cycle is on Saturday the 12th of September at 9am from the National University of Ireland, Galway.

100% of proceeds go directly to Duchenne Ireland's "Duchenne Muscular Dystophy Research Programme", which last year alone was involved in supporting five different research projects with many more planned for this year.

Keywords: Duchenne Muscular Dystrophy, Muscular Dystrophy, Research Projects

Contact Duchenne Ireland


Print this page


Other products and services from Duchenne Ireland


duchenne Ireland - News

Three patients, one each in the 2.0, 10 and 20 mg/kg cohorts, demonstrated substantial generation of new dystrophin-positive muscle fibers, including the first ever reported generation of dystrophin-positive muscle fibers of more than 50% of normal in a patient following systemic administration of a drug.


duchenne Ireland - Research

Safety study follow-on clinical study for patients who participated in earlier ataluren. If you have any questions relating to this announcement or the follow-on safety study. As reported in our June Programme Update, Genzyme has been actively exploring. Ataluren and as part of our ongoing commitment in keeping the DBMD community. Transition of all DBMD related activities to PTC. PTC for the ataluren nmDBMD programme.


duchenne Ireland - Collaboration

This project would not be in place at all if it was not for the dedicated work of Professor Steve Wilton and Professor Sue Fletcher from the University of Western Australia who have consistently progressed therapies for Duchenne boys over the past number of years since Exon Skipping showed initial therapeutic potential.


duchenne Ireland - Fundraising

Funding for Duchenne Ireland research is generated from charity events such as this weekend’s Tour Duchenne 2010, taking place at 9am at the Aquarium, Strand Road, Bray.Tour Duchenne Is Duchenne Ireland’s annual charity cycle to raise funds for Duchenne Muscular Dystrophy research.