Cystic Fibrosis Association of Ireland - Services - services

By: Cystic Fibrosis Association Of Ireland  05/12/2011
Keywords: Cystic Fibrosis

CFAI appreciates all information and concerns communicated to staff at CF House, by members, CF care staff and other interested parties. As the representing body for people with CF in Ireland, it is important for us to understand the real issues that people are facing at home and in the CF centres. In order to ensure that any issues raised are given due credence and attention, CFAI is implementing a system to accurately record and follow up on all queries brought to our attention.

Any concerning issue will be noted and recorded on the Information Retrieval Form, and reports will be compiled by CFAI from the data on these forms on a six-monthly basis. No names or other personal details will be included in the reports; they will simply monitor trends and identify key issues. This will help to direct CFAI's work in terms of identifying priorities, and will equip the Association with relevant statistics to lobby on behalf of members

Staff at CF House may be able to help resolve some issues directly. Others will contribute to wider advocacy campaigns and CFAI strategy development in the medium to long term.

Information retrieved by staff members at CFAI will be categorised into one of the following general groups:

  • Issues relating to hospital facilities / staffing
  • Issues relating to organ donation / transplantation
  • Issues relating to social welfare / HSE entitlements
  • Issues relating to insurance
  • Situations of home distress
  • Other (specified)

Please send completed Information Retrieval Forms to

Keywords: Cystic Fibrosis

Contact Cystic Fibrosis Association Of Ireland

Email - none provided

Print this page


Other products and services from Cystic Fibrosis Association Of Ireland


Cystic Fibrosis Association of Ireland - Services - physiotherapy

The Cystic Fibrosis Association of Ireland will assist, wherever possible, in providing a domiciliary physiotherapy service to people with Cystic Fibrosis, according to the guidelines laid down by the Association, and on prescription by a doctor. Details of this service are available on request from the National Office of the Cystic Fibrosis Association.


Cystic Fibrosis Association of Ireland

Although Cystic Fibrosis has been a major part of my family's life for over 40 years, I want to show that there is fun and joy as well as sadness involved, and that life is for living. Proceeds will help purchase equipment for the CF Adult Outpatient & Inpatients Unit Midwestern Regional Hospital. Price includes one pack of Christmas cards and postage. 10 per pack inclusive of postage and packing within ROI.